Tuesday, June 28, 2011

Normalcy. Hmm. Not exactly.

Just when I began to feel my first hints of normalcy in life and health, I had to, against my better judgement, go, and show back up to this…. GAP (you know, the GawdAwfulPlace that I will have to keep coming back to every 3 weeks through December…the oncologist’s place and the chemo room). Today was a bonus day too, in that I not only got to see the Oncologist himself, but also got to also see the radiation oncologist’s nurse so that she could check out my burned skin.    Good news on the radiation end of things is that, as you may have noticed from last week’s countdown, radiation, itself, is over.  The burn, however, is improving in some areas and worsening in some areas.  It is also actually hurting worse on the inside.  The muscles under the skin feel kind of like cooked meat, if you will.  Overcooked really.  They feel tough and stringy.  You know how I am not impressed by overcooked meat.  Good news on the oncology end of things is that the oncologist actually accurately dictated everything I could hear him say today! And as far as we know, I still do not have Cancer!   On the more disturbing end of things, I still get to start the new oral chemo drug, Tamoxifen, this week.  I am scheduled to be on this drug for 5 years.  Sounds overwhelming, especially when the doctor and the pharmacist review the side effects…” some people just don’t feel good…” said the doctor.  “Like what”, I said… ”well, it could be a whole host of things…you’d have to go to the PDR (Physician’s Desk Reference) to see them all”, he says…”Greeaat”, I thought to myself.  Of particular note is the possible WORSENING HOT FLASHES, Increased Risk for Blood clots and therefore possible pulmonary embolism which could lead to death,  increased risk of endometriosis and endometrial…you guessed it…CANCER.  But, since I’m on a lucky streak lately, I’m feeling pretty confident none of these will apply to me. J  I forgot to ask if, my plans to begin training for, and running a very difficult 50 mile race was going to be a problem.

Oops. White count back down below normal. Darn.  Red Counts about the same as last week with HGB slightly up and RBC slightly down. All still in the below normal level.

Now for a quote that I saw recently on the internet that I liked: (I know, what’s up with all the quotes lately? I must be in an introspective phase.  Note to  WWFFss...I’m out.  Except for Olyveoyl.  Sorry, it’s been a great run, or rather something to do instead of running…I love you all but my time is up). Back to the quote:

“The only dream worth having is to dream that you will live while you are alive, and die only when you are dead.  (Do to the author’s use of the word ONLY, it might seem like the quote would end here, but it does continue on with some more pretty good stuff.) To love, to be loved. (Good one.)  To never forget your own insignificance. (Easy enough).  To never get used to the unspeakable violence and vulgar disparity of the life around you. (Not a problem).  To seek joy in the saddest places. (Doing that now).  To pursue beauty to its lair. (I’m not sure what that means.) To never simplify what is complicated or complicate what is simple. (I’ll need some work on that one.) To respect strength, never power. (Not even PowerHowell? Not sure I like that one.) Above all, to Watch.  To try and understand.  To never look away.  And never, never forget. (Done.  Unless the Oldtimer’s get’s me.)

--Arundhati Roy

Now, Here is a new, just fresh off the lips of the chemo nurse l quote that I heard just now:
We’re so screwed today… that’s just the way it is”.
Frustrated Chemo Nurse



  1. Glad to see you looking so RECOVERED with all of that hair and energy. Feeling normal is better than actually being normal. Keep on the path!

  2. Arundhati Roy is the shit!! Have you read The God of Small Things? If not you can borrow it right after you breeze through The Sound and The Fury :)