progress

In spite of the fact that the food menu is limited, and they microwave, or steam, eggs, (for consumption) (if you know me, you know that I'm an egg snob, but you also must know that...) I LOVE the fact that the coffee shop that I frequent every Tuesday after my Rogue group run, does great foam on their Cappuccino, and is named progress.  I love how the big green sign is displayed right there, on the top of the edifice. Nothing fancy.  Just simple, regular, circular type letters...progress. 

I've mentioned before that my goal is Relentless Forward Progress.   At this point, I feel that I'm still working up to that.  I haven't quite achieved the Relentless part, and much of the time I'm still checking that I am indeed still moving forward.  However, there is Progress being made.   In the midst of all of this past week's RattleDown!  (this is my new call out for snakes on the trail....like...on your left....or, bike up :)) and my F****** Herceptin Treatment last Wednesday, I forgot to actually give an update. No, it was not the harpists fault this time.  I was simply in a grumpy mood, despite having a delightful trail run that morning.   

Areas of Progress over the past 10 days have included, but possibly not been limited to:

1. I had an actual conversation with my oncologist.  We, of course,  did not agree . I asked if i could have some EPO or some extra blood, or something to take care of this low RBC count once in for all, and all he said was...."don't even mention that here".....followed by, "Lance did the Tour with a RBC count of 10".  Really?  I need to look that up.  I find that hard to believe.  Anyway,  I thought it was odd that he mentioned Lance...I had not brought him up.  I just wanted the EPO. He told me my problem was not critical.  I did throw it out there that it could potentially become critical at mile 40 of the 50 mile race i had planned, and then he attempted, successfully, to sidetrack me with something about serum IRON.  I fell for it.  They tested my Iron Saturation or something, and it turns out it's fine, so I DO NOT get the special Iron treatment i was hoping for.  My problem is just not bad enough.  My RBCs did go up slightly this round, but i've been taking iron now for 3 weeks, and eating about 2x as much Red meat as i used to.  I think this part might have actually caused a slight setback due to the fact that this red meat plan convinced my mind on one or two occasions, to eat chicken fried steak, because it would be good for me.   

2.  I faced my 3rd motivation test and passed, pretty much with flying colors.  I'll be brief.
The first test, i already mentioned.  It was when my alarm did not go off and i still made it out to run 8 miles alone.  Second test: Run on Treadmill 5 miles when i DID NOT feel like it after a long day at work. Third Test: Run 11 miles on trail ALL BY MYSELF on tired legs, partly in the dark, and alongside multiple snakes, the day after i had chosen to ride my bike for 3.5 hours of hills.

3. I actually reached out to the medical profession for assistance with my severely tight chest/arm problem....and it's helping.   I've attended two sessions of Active Release Technique treatments and it pretty much hurts like HELL, but it is helping.  I'm also getting treatment for the shin splints that I've been avoiding for about 4 years as well, and it is helping with that too :).

4. I've had a bit of time to think about my surgical/reconstruction options and have actually had one conversation with my husband about it.  Zero decisions made, but at least not backward motion. 

5.  I had fun with my family at a county fair despite the heat outside. 

Ferris Wheel

6. And IT RAINED here last weekend!! it was beautiful!

Teenage Fanclub

Do you know what Teenage Fanclub and Trail Running have in Common?

They’re slow and awesome, and they'll rock you to the core.

This week's runs have given new meaning to the terms...

Solo Trail Run…

Group Trail Run….

"I'll take this chance to tell my friends what I'm thinkin' of....on second thought, I'll think some more and tell you lady luck."

Teenage Fanclub   (December)

Reconstruction

“I'm a woman with 1  D cup. My shirts won't even stay in place without my heavy rubber prosthetic breast.  I wanted to do the bilateral mastectomy from the beginning, but the doc wouldn't do it until reconstruction. I really dislike being lopsided. The prosthesis is a hassle. Also, sometimes I see, or feel my mastectomy side and it makes me sad, especially next to the breast that is still there that should eventually be removed.  Sometimes I think I'll be ok with 2 mastectomies without reconstruction, and other times I do want something built in (smaller though)to fill a swimsuit.”

This above comment is something that I wrote in response to a blog that I follow.  Some Girls Prefer Carnations.

In her recent post, the author Heather was discussing breast reconstruction after mastectomy.   Since writing the comment, I’ve had some more time to think about all of this.  I Love how Heather is very confident and sure in her decision not to have reconstruction.  I WISH I could feel the same way.  The full story  is that, I DO NOT WANT to have another surgery.  I’ve had 2 C-Sections, and a Right Mastectomy.  The Mastectomy, which the doctor stated might take 4-6 weeks to recover from (without radiation), is,  even now, 6 months after the surgery date, still causing me problems.  I am , as a matter of fact,  this very day,  seeking medical attention for the severe tightness in my pectoralis major and minor that is compressing a nerve and causing some tingling in my hand.   I am afraid of the next surgery.  Even when I consider the least invasive of options which is just having the mastectomy on the left without any reconstruction, I am afraid of the risks and the lingering tightness that I am currently experiencing.  You may be asking…Why even have the mastectomy on the right?  Well, the doctors recommend it due to the fact that I’ve had breast cancer (which was an aggressive form) and  I’m only 41 years old.   I actually agree with this medical recommendation.  I am considered high risk, I do not want to go through breast cancer treatment again.   Also, now that I’m super lopsided, AND I DO NOT LIKE IT, the idea of leveling things out sounds great to me.  When this all of this treatment started,  reconstruction sounded like the obvious decision.  Badda Bing….Chemo, surgery, reconstruction, back to normal life with “right-sized” breasts J.  Just another small RIF.  (Reduction in Force for those of  you who have not yet been directly affected by the economy).   Now, after living with  post-surgical tightness and discomfort, and understanding that there will not really be feeling in the area(s), it seems less obvious.  However, as I mentioned above, I don’t like dealing with the prosthesis, and I’ve mentioned a time or two….I DO NOT LIKE being LOPSIDED.  It is not simply a matter of how it looks (although it does make me turn for a second look whenever I pass a mirror)  it is how it feels.   I like the Carnation’s author and readers’ opinions that everything in the world does not have to be “matchy, matchy”, and that there is “beauty in asymmetry”.  I hear all that, and would agree, but,  it just doesn’t feel right to me.  Also, while I really have never wanted the larger cup size that I have/had, I have become accustomed to having something there.  I have enjoyed filling out a bathing suit or a low cut shirt.  With that said, other than the severe tightness, the lopsidedness, and the extreme reminder of what I’ve been through,  the mastectomy site itself does not really bother me.  It does not feel bad not to have something there.  I even kind of like it in some ways.  As I’ve mentioned, I do look like a faster runner on that side.      

Had I not been typing the above entry from my ephone, I would likely have mentioned all of this.

In the light of this discussion, I’ve decided to name this phase of my life just that.  Reconstruction. This is the time period in which I’ll be working to re-build my physical and mental strength in order to run a 50 mile run, and to be able to make a sound decision regarding my future with surgery.

On that note, Reconstruction is well under way.  Here is an example of a very good sign:  Yesterday, when my alarm failed to go off at 4:45 am for my Tuesday morning 5:30 a.m. group run, and I woke up at 6:08 a.m. I was very upset.  I was able to gather myself and still make it out the door, drive downtown, and start running my solo 8 mile road run by 6:31 a.m.  I completed the run without a walking break despite lack of conversation, high temperatures and large hills J.

P.S. We'll miss you Bastrop.

Am I Back?

I’ve had several people ask me in the past week… “Are you back to running?”  Well, the answer, I guess, is yes.  I’m not AS BACK as I’d like to be, though.  I am struggling.  I’ve been having some difficulty being able to tell if it is the 105 degree weather here, my lower than normal red counts, or just being fat and out of shape (Breast Cancer weight and Post Chemo muscle atrophy) that is causing my struggles.  I’ve been working on the breast cancer weight and I’ve made some progress.  I’ve lost about 3 lbs.  I was working my A** off to eat a diet above and beyond healthy in order to get my red blood counts back up ($12 salads).  4 weeks ago, they were up a little (seemed to be a slow steady rise) but then last week they dipped back down to: RBCs = 3.27 (normal is 4.2-5.4), Hemoglobin = 10.7 (Normal is 12-16) and Hematocrit = 30.5 (Normal is 37-47).  The good news is that this time around my White Blood Cells were Normal at 5.2 with normal range being 4.8-10.8.  So, it is kind of odd or ironic that today, I am actually experiencing a fever/sore throat/illness due to some virus.   Am I back?  Today is a bad day to ask me that.  Ask me in 10 days.  This is how long I’ve got to get over this virus, and get my weekly running average up to 34 miles/week in order to start my 24 week training plan for the 50 mile trail run I want to do on March 3^rd.  My highest weekly mileage, yet, (since surgery) has been 30 (mostly trail miles, however).  That was one week ago, the week before my last Herceptin.  Last week during a down week, my calves began to flare up like they used to…Posterior Tibial Tendonitis, plus some gastroc issues.   September 19 is Day One of my 24 week training plan.   I just completed my spreadsheet for this training plan, and I’m going to tell you the truth, here.  I’m a bit concerned that I’m going to be cutting it pretty darn close and pushing the envelope on what is reasonable considering my medical situation.   Mind you, prior to cancer, when I was training for the Bandera 50K, my plan topped out at 62 miles/week and I commonly did 40-55....but that was before.  One bit of good news is that my Herceptin treatments should be over in the end of December, so I should have 8 solid weeks no chemo (except the daily oral Tamoxifen) before the race.  

Here is what the plan looks like: Click on link below :)

Nueces 50 miler Training Plan : Top 60 miles per week                                                

This is a rough draft, and I’m sure there will be some changes in the plan once I start up with

Tejas Trails.  I’m planning on starting up in October, once the weather cools down a bit more.

Besides being initially upset by my drop in RBC counts, the ensuing complications due to my initiation of iron pills in order to improve the red counts, contracting this irritating virus, and my inability to hold my alcohol, I’ve had a pretty darn good week.    You need to know that I did not take this decision to start taking iron pills lightly.  I’ve been holding out on taking iron, since, basically, the beginning of all of this treatment.  Despite being borderline anemic pretty much my whole life, I’ve never been able to tolerate taking iron pills.  I tried taking them when I was pregnant because I was trying to be a good parent, and I’ll just say that that plan ended with me spending 45 minutes in a friend’s bathroom, during a party, giving what I later called “practice birth” to something too hideous to describe. (Severe Constipation).    But, I’m desperate.  I know I need these counts back up to be able to run…especially up hills.  I plan to ask my physician if I can get a transfusion of my own blood, or EPO, or something, but I’m about 100% sure they won’t do it.  My counts are low, but just not critical according to a new friend of mine who is a chemo nurse. (I know, befriending the enemy….you know what they say…friends close….)  Maybe if I explain that it could become critical at mile 40 or so, they’ll listen.

This week, I had some great times.  It was a holiday weekend and I enjoyed a 4 day Staycation!!  My favorite band, Downtube Shifter, played on Friday night and I was able to go to the show.

Downtube Shifter
Next Show: Saturday October 1st  Carousel Lounge 10 PM!

Downtube Shifter Fans!

It was a late show, and here’s where my inability to hold my alcohol comes in.  It’s not that I drank very much.  On the contrary, actually.  I just don’t have the constitution, or the ability to process the alcohol, so I am a pretty cheap date.  I had a lot of fun on Friday night, but Saturday morning was not pleasant, except that Grammy and Dpo took the boy off to Houston for a 3 year old Princess Party, so we had a quiet day.  I think maybe in some ways it was a good thing to have suffered a bit as a reminder that I need to be putting as few toxins in this body as possible, especially once my 24 week plan starts.  

Saturday afternoon, Richie and I got to go out again, together, onto a party Barge on Lake Austin for a couple of my friends’ birthday party.  It was a blast hanging out with my friends from the Outpatient department! and the weather and sunset were beautiful. 

Awesome Chicks of Outpatient!

This time I paced myself and was able to get up the next morning to complete my 5 mile trail jog on Sunday.  Monday was Labor Day and for the first time in about 3 months the temperature dropped below 74 degrees overnight.  It was awesome.  That morning I got to go out to my beloved Hill of Life and run 7 miles with my good friend, and the temperature was between 75 and 78 degrees and not humid.   It was beautiful, and I did not feel like total F****** S*** during the whole run. I actually had fun.  Progress.  Monday afternoon I enjoyed a wonderful nap, and then some of our close friends came over for a barbeque and fish fry and we got to play outside with the kids and enjoy just being out, for the first time in Months!  What a perfect day!